Phillips, L. R., et al. (2010). End-of-Life Caregiver’s Perspectives on their Role: Generative Caregiving. Gerontologist, 50(2), 204–214. Abstract. Full text.
Purpose: To describe caregivers’ constructions of their caregiving role in providing care to elders they knew were dying from life-limiting illnesses.
Design and Methods: Study involved in-depth interviews with 27 family caregivers. Data were analyzed using constant comparative analysis.
Results: Four categories were identified: centering life on the elder, maintaining a sense of normalcy, minimizing suffering, and gift giving. Generative caregiving was the term adopted to describe the end-of-life (EOL) caregiving role. Generative caregiving is situated in the present with a goal to enhance the elder’s present quality of life, but also draws from the past and projects into the future with a goal to create a legacy that honors the elder and the elder–caregiver relationship.